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Conquer Chiari Walk Across America Event Set

[ 0 ] May 4, 2013 |

Chiari Malformation is a serious neurological disorder affecting 300,000 people in the US. The Conquer Chiari Walk Across America is a series of local awareness and fundraising walks held across the country on the same day.  Join us on this special day and help the thousands of families struggling with this terrible disease.

All proceeds will be used to fund Chiari research, education and awareness programs.

About The Walk Across America

What: The Conquer Chiari Walk Across America is a series of coordinated awareness/fundraising walks being held across the country on the same day.

When:  Saturday, September 21st, 2013.  Registration begins at 8:00 AM.  Walk begins at 9:00 AM.

Where: The local walk is being held at Maury County Park – Columbia, TN 38401 Walk length is flexible up to 5k, walk at your fitness level.

Who: Everyone is invited to participate.  A minimum donation of $25 is suggested.  Participants are asked to pre-register on-line at www.conquerchiari.org. T-shirts will be provided to those who pre-register by 8/16 and contribute at least $25. Contact: Amy Ray at (931) 334-4324 and ajray2012@gmail.com

Why:   To raise awareness of Chiari Malformation and to raise money for valuable research.  All proceeds will fund research through Conquer Chiari.  In 2012 the Conquer Chiari Walk Across America raised over $535,000 with 80% of the money going directly to fund research.

About Chiari Malformation

joejanechiariNeurological disorder where the brain descends out of the skull and puts pressure on the spine. Affects about 300,000 people in the US. Affects people of all ages and races. Causes a wide ranging, diverse set of symptoms, including severe headaches, neck pain, balance problems, weakness in the arms and legs, and respiratory problems. Patients often go 5 years or more before being diagnosed.  Many patients undergo traumatic brain surgery to try to relieve symptoms. Surgery fails about 20% of the time and many patients require multiple surgeries. Chiari can place a tremendous strain on patients and their families. Very little federal funds have been directed towards research.

About Conquer Chiari

Conquer Chiari, known formally as the C&S Patient Education Foundation, is a 501(c)3 public charity dedicated to improving the experiences and outcomes of Chiari patients through education, awareness, and research.  The Conquer Chiari website (www.conquerchiari.org) is the single most comprehensive source of information available on Chiari and related topics.  For more information, contact:  Rick Labuda, Executive Director, director@conquerchiari.org, 724-940-0116.

 

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Category: Events, Fundraisers & Announcements

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